Unique- Rare Chromosome Disorder Support Group (Rare Chromosome Disorders)

United Leukodystrophy Foundation (Leukodystrophies, Adrenoleukodystrophy, Adrenomyeloneuropathy, Alexander's Disease, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy-CADASIL, Canavan Disease, Cerebrotendinous Xanthomatosis, Krabbe Disease, Metachromatic Leukodystrophy, Pelizaeous-Merzbacher Disease, Refsum Disease, Zellweger Syndrome)

United Mitochondrial Disease Foundation (UMDF) (Leigh's Disease, Mitochondrial Disorders)