July 21, 2014
London Health Sciences Centre (LHSC) has launched a Regional Renal Program website to provide resources for patients to assist them with their journey through treatment.
“We began the process of developing this website by asking input from our patients,” says Don Bester, Manager, Regional Renal Program, LHSC. “The ‘aha!’ moment came when our patients told us they wanted to learn from the experience of other patients.” That input would form the basis for LHSC’s most patient focused website.
The website was launched in front of patients, Regional Renal Program staff, and representatives of the Ontario Renal Network to signal the team effort involved in its creation. The content focuses on a broad range of topics from the basics of kidney disease, new diagnosis, treatment options, adjusting to dialysis and a section for families with support information. Information about medication, exercise, and dietary information, including recipes can also be accessed.
The hallmark of the website are the patient testimonial videos. The videos, eight unique patient stories in total, combined with care information provide a holistic approach to learning about kidney disease. For patient Deb Beaupre sharing her story was “an opportunity to alleviate fear for other patients, especially for those who have just been diagnosed,” she says. “But, it was also a healing experience for me as well.”
“Anyone can view the patient stories in their entirety, or focus on the parts of the story that are most relevant to them,” says Susan Scott, Social Worker, LHSC. “We will continue to update the content and incorporate ongoing feedback. This platform allows us to communicate the information most important to patients.”
For Neil Johnson, Vice President, Cancer Care, LHSC, “the website represents LHSC’s commitment to excellence of care in a patient centred way. Our focus will continue to be working with patients, and not just for patients.”
The website was launched in front of patients, Regional Renal Program staff, and representatives of the Ontario Renal Network to signal the team effort involved in its creation.