Dr. Andrea Andrade, Neurologist and Epileptologist Director of Paediatric Epilepsy Program and pediatric epilepsy fellowship training Areas of interest: Drug-resistant epilepsy, epilepsy surgery, invasive monitoring (sub-durals and SEEG), and neuromodulation in epilepsy. Epileptologist - An Epileptologist is a neurologist who has specialized training and experience in the management of paediatric epilepsy
- Our Epileptologists have clinical expertise in EEG interpretation, diagnosing epilepsy, and creating various treatment plans (including medications, ketogenic diet, and epilepsy surgery)
- After an initial consultation with you and your child, an individual plan of care is established
- Follow-up appointments are individualized to best meet your child's health needs
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Dr. Maryam Nouri, Neurologist and Epileptologist, Director of Paediatric Epilepsy Program and pediatric epilepsy fellowship training Areas of interest: Drug-resistant epilepsy, epilepsy surgery, invasive monitoring (sub-durals and SEEG), and neuromodulation in epilepsy. | |
Dr. Asuri Narayan Prasad, Neurologist and Epileptologist Areas of interest: Epilepsy associated with genetic and metabolic disorders, epileptic encephalopathies, co-morbid conditions and outcomes of epilepsy, and ketogenic diet. Dr. Prasad consults on specific cases for our paediatric epilepsy program such as: - Epileptic encephalopathies
- Ketogenic Diet
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Dr. Tugce B. Balci, Medical Geneticist Areas of interest: Rare disease research, gene discovery and disease modeling, part of Care4Rare Canada project, with a focus on neurological conditions, especially epilepsy. Medical Geneticist - A medical geneticist is a doctor who specializes in genetic/inherited conditions. They use and interpret genetic information for the diagnosis and management of rare genetic diseases in individuals and provides counseling to their families about prognosis, implications for other members, recurrence risks, family planning, etc.
- Our medical geneticist is engaged with research involving gene discovery and novel ways to diagnose undiagnosed rare genetic diseases.
- After an initial consultation with you and your child, we will decide together on the most ideal genetic test for your family. You will receive detailed information both before and after the test.
- Follow-up appointments are individualized to best meet your child's health needs and complement your family’s genetic care.
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Dr. Ana Suller Marti, Neurologist and Epileptologist Areas of Interest: Drug-resistant epilepsy, invasive monitoring (SEEG and cortical stimulation), epilepsy surgery and outcomes, neuromodulation in epilepsy (VNS and DBS), SUDEP. Adult Epileptologist - An Epileptologist is a neurologist who has specialized training and experience in the management of adult epilepsy
- Our Adult Epileptologist has a combined clinic with the Paediatric Comprehensive Epilepsy Clinic for transition for youth to adult care.
- After an initial consultation with you and your child, an individual plan of care is established
- Follow-up appointments are individualized to best meet your child's health needs
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Dr. Sandrine deRibaupierre, Neurosurgeon Area of interest: Paediatric epilepsy surgery Neurosurgeon - The neurosurgeon is a surgeon who has had special training in brain surgery.
- Our neurosurgeon has surgical expertise in paediatric epilepsy: focal resections, disconnective procedures (hemispherotomy), subdural electrode placement, implantation of vagal nerve stimulators, and robot assisted Stereo-electro-encephalogram (SEEG).
- After an initial consultation with you and your child, an individual plan of care is established.
- Follow-up appointments are individualized to best meet your child's health needs.
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Dr. Lama Alandijani, Epilepsy Fellow Epilepsy Fellow - A fellow is a paediatric neurologist who is getting additional formal training in epilepsy.
- Often the fellow is present during your child's clinic visit and/or hospital stay. As part of their learning objectives, they actively participate and contribute towards the care of your child.
- They have clinical expertise in epilepsy, from diagnosing to medication management.
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Dr. Jawaher Alanazi, Epilepsy Fellow Epilepsy Fellow | |
Clinical Neuropsychologist - A clinical neuropsychologist has specialized training in understanding the relationship between the brain and behaviour.
- Our neuropsychologist provides comprehensive assessment of your child’s thinking skills (e.g., intelligence, attention, learning, memory, language, visual-spatial skills, fine motor skills) and academic skills, as well as examination of their behaviour, emotions, and social skills.
- Assessment may include interviews, questionnaires, observation, and testing. Testing with your child will involve paper-and-pencil tasks, answering questions, puzzles, and other activities.
- The purpose of an assessment is to identify your child’s unique pattern of strengths and weaknesses, and to make recommendations for academic programming and planning. If your child is being considered for surgery, this assessment will be completed as part of their work-up to assist in decision making regarding candidacy.
- Feedback is provided to patients and their families, as well as to other members of the Epilepsy Team. Consultation with schools may be provided as needed.
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Michelle Kregel, Nurse Practitioner Area of Interest: Paediatric Epilepsy Paediatric Nurse Practitioner - A Paediatric Nurse Practitioner (NP) is an advanced practice nurse who provides primary and specialty care to children from infancy through young adulthood
- Our NP has experience in paediatric epilepsy care and can diagnose epilepsy and create specialized treatment plans for different types of epilepsy and epilepsy syndromes during childhood throughout adolescence
- Often the NP is present in your child’s clinic visit and/or hospital stay
- The NP facilitates the coordination of care for specialized treatment options such as epilepsy surgery (SEEG & neuromodulation)
- The NP provides education to families and other health care professionals in regard to epilepsy in children and advanced treatment options.
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Amanda Quann, Registered Nurse Registered Nurse - The registered nurse for our epilepsy team has additional expertise in paediatric epilepsy
- Actively participates with your child’s epilepsy team by acting as a liaison between you and your child’s epilepsy team members
- Coordinates tests, examinations and consultations to ensure they are carried out within the best possible time frame
- Identifies the health needs of your child and provides information and education in regards to new diagnosis, seizure medication management, and the plan of care within the Comprehensive Epilepsy Clinic
- Partners with community agencies to assist in addressing your child’s relevant needs in the community
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Chantal Douglas, Administrative Epilepsy Coordinator Administrative Epilepsy Coordinator - The administrative coordinator books your child's PEMU appointment, once a referral has been received from your doctor
- The coordinator books any further appointments or tests, as needed
- Correspond on a regular basis, with multiple departments and health care providers, to streamline and advance your child’s care
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Dr. Anastasiia Skovronska, Clinical Neurophysiologist Clinical Neurophysiologist - The Clinical Neurophysiologist is a healthcare professional with expertise on the physiological aspects and the tools that measure the nervous system
- Our Clinical Neurophysiologist has expertise in EEG readings, evoked potential, interpretation, intra-operative monitoring and EEG equipment
- They work under the supervision of epileptologists and neurologists
- They engage in both clinical and academic activities
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Madeleine Blais, Paediatric EEG Technologist EEG Technologist - An electroencephalographic (EEG) technologist is a trained medical professional who uses specialized equipment to locate electrical brain abnormalities
- They work under the supervision of doctors and neurologists
- Assist in coordination of care by facilitating EEG tests around outpatient appointments and while patients are admitted in hospital
- Provide testing for routine EEG’s, Paediatric Epilepsy Monitoring Unit (PEMU) admissions, inpatient urgent EEG’s as well as highly specialized intra-operative and invasive EEG’s tests in and outside of the OR
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Daniela Yepes, Paediatric Epilepsy Research Assistant Paediatric Epilepsy Research Assistant The research assistant is responsible for the administration and oversight of Paediatric epilepsy research studies Actively coordinates multiple research projects for Investigators (Dr. Andrade, Dr. Nouri and Dr. Prasad) at Children’s Hospital Submits protocols to research ethics boards, recruits participants, and collects data for studies and clinical trails Corresponds with families participating in research, informing them of study objectives, next steps and engaging families throughout the research process | |
Paediatric Epilepsy Research Coordinator The Paediatric Epilepsy Research Coordinator (PERC) coordinates investigator and clinical research studies according to regulatory and institutional guidelines and requirements. The PEPC is responsible for the administration, coordination and oversight of paediatric epilepsy research studies - Assist the Principal Investigators (PIs) in new research proposals and preparation of grant applications; contributing to preparation of reports, presentations, and manuscripts
- Develop informed consent documents based on regulations, REB consent templates and institutional requirements. Submit to REB and coordinate revisions. Assist PIs with annual approval process, amend and renew protocols and consents as required
- Develop and monitor timelines for study, Provide information and documentation for potential participants (consents, patient eligibility items, required pre-study testing and roadmaps).
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Epilepsy Educator, Epilepsy Southwestern Ontario - Attends the Comprehensive Epilepsy Clinic to assist and support families and children who have drug resistant epilepsy
- Provides education to families and their children who are diagnosed with epilepsy in a community setting
- Provides education and training to you or your child’s school and teachers
- Provides a multitude of programs and services, camps, and awareness days to enhance the lives of people affected by epilepsy
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Vanessa So, Registered Dietitian Registered Dietitian - Registered dietitians are health care professionals who are trained to provide advice and counselling about diet, food and nutrition
- They use the best available evidence coupled with good judgment about the patient’s unique values and circumstances to determine guidance and recommendations
- Within the epilepsy team, the registered dietitian manages and follows patients who are on the ketogenic diet
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Erika Clements, Child Life Specialist Child Life Specialist - Help children and their families understand their reactions and concerns to the hospital experience by providing accurate and honest information
- Suggest coping techniques for procedures such as distraction, deep breathing and relaxation techniques
- May be present during medical procedures and provide information about medical events
- Provide opportunities to play
- In many occasions, children with epilepsy have intellectual and behavioural disabilities. The child life specialist provides support and coping strategies to this particular population
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Carrie Charters, Social Worker Social Worker - The social worker is available to patients and families to provide supportive counselling in hospital and over the phone
- Families may benefit from discussing emotional, financial, family and other related concerns with a social worker as you try and understand, adjust and cope with an epilepsy diagnosis and treatment
- In addition, the social worker can assist with information about community resources and/or financial programs that are available
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Nicole Dendekker, RN, Transition Navigator Transition Navigator - A Transition Specialist assists youth and their family with preparing a Transition Plan that incorporates funding supports and community based programs before entering the adult health care system
- Transition planning provides youth with the necessary skills and knowledge to maintain health promoting behaviors and practice self- directed care as they approach the age of transfer
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Kalene Van Engelen, Genetic Counsellor Genetic Counsellor - A genetic counsellor is a health care professional who helps families understand and adapt to the medical, psychological and familial implications of genetic contributions to epilepsy
- Genetic counsellors:
- Gather information about your medical and family history to assess and understand potential genetic risk factors in your family
- Describe the process of, and consent for genetic testing if applicable
- Educate families about genetics diagnoses, including management and inheritance
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Bonnie Wooten, RN, BA, MPA, Decision Coach Shared Decision Making Coach - Is available to help families in their decision making process for topics such as: medications, procedures, tests, and surgeries.
- Offers a supportive, neutral and non-directive process
- Provides coaching face-to-face, on an individual or group basis, by telephone, email, online or through telehealth
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