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Online Resources for Patients and Families

Inherited Heart Rhythm Clinic:

Canadian Association of Genetic Counsellors

Provides a list of Canadian Medical Genetics Clinics by province and city.

Canadian Cardiovascular Society

Provides information about the society that is the national voice for cardiovascular physicians and scientists. The CCS mission is to promote cardiovascular health and care through knowledge translation, including dissemination of research and encouragement of best practices, professional development, and leadership in health policy.  Information is present for patients, physicians, other heath care professionals and the media.

Canadian Genetic Heart Rhythm Network

The Canadian Genetic Heart Rhythm Network network is a collaboration between Canadian Heart Rhythm Specialists with an interest in inherited heart rhythm disorders, committed to patient and public education, excellence in clinical care and research to increase knowledge that improves recognition and treatment of these conditions. This includes a list of Inherited Heart Rhythm Clinics across Canada.

Canadian Heart Rhythm Society

Provides information about the national society for Heart Rhythm Health Professionals and its mission to promote research and education programs in the field of cardiac electrophysiology, provide professional leadership and guidance in clinical practice, including the development of Consensus Conferences, Position Statements and National Data Registries.

Canadian SADS Foundation

Provides information for the public about SADS, whose mission is to support and educate the public regarding inherited causes of sudden death.

C.A.R.E Foundation

Provides information for the public about C.A.R.E, whose mission is to formulate, promote and lead initiatives to prevent sudden cardiac death due to acquired and heritable heart rhythm disorders.

Center for Genetics Education (New South Wales Health, Australia)

Provides information regarding the Centre for Genetics Education, which is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them.

Genetics Home Reference

Provides a Help Me Understand Genetics handbook, which presents basic information about genetics in clear language and provides links to online resources such as:

  • Inheriting Genetic Conditions (Inheritance patterns and understanding risks)
  • Genetic Consultation (finding and visiting a genetic counselor or other genetics professional)
  • Genetic Testing (benefits, costs, risks, and limitations of genetic testing)

American Heart Association

This site will help you better understand arrhythmias and what to do if you or a loved one has been diagnosed with this problem.  This website provides comprehensive information for patients and families regarding the heart's electrical system, types of arrhythmias, treating and living with arrhythmias.